Manitoba autism advocates rally to ensure support for adults remains protected

Health policyTodayCanada

Federal government updates medical assistance in dying law for advance requests

The federal government is amending the Criminal Code to permit medical assistance in dying (MAID) for individuals who provide consent via advance directives before losing decision-making capacity. This change aims to protect practitioners from criminal charges when fulfilling these requests. Advocacy groups warn that delegating implementation to provinces may result in inconsistent access across the country.

You may soon need to prepare for new provincial protocols regarding how advance requests for MAID are documented and fulfilled in your clinical practice.

Health policyTodayManitobaWinnipeg (WRHA)

Manitoba patient with Ehlers-Danlos syndrome appeals denied funding for out-of-province surgery

Tomas Ponzilius, 33, of Winnipeg lives with Ehlers-Danlos syndrome, a rare genetic condition that weakens connective tissue and causes cervical instability, leaving him in extreme pain and mostly bedbound. Manitoba Health denied his request for a $200,000 cervical fusion in Maryland, saying he had not proven the care is unavailable in Manitoba or elsewhere in Canada, and pointed him to an Ontario clinic that does not accept out-of-province patients. His neurosurgeon says the expertise is not available in Manitoba; he awaits an appeal ruling and says he has considered medically assisted dying.

A Winnipeg man with a rare condition says Manitoba's out-of-province referral process left him with no pathway to care, while the province says referral routes exist - a gap frontline workers will recognize when patients ask why specialized care is out of reach.

Health policyTodayCanada

High cost of new pancreatic cancer drug limits patient access in Manitoba

Daraxonrasib (Rasonque), a pancreatic cancer pill approved by the U.S. FDA in August but not yet in Canada, costs about $90,000 Cdn a month - Vancouver patient James Howard pays about $63,000 US a month for three daily doses. Its launch price is $480,000 US ($675,000 Cdn) a year. Trials showed it halted or reversed tumour growth in nearly a third of patients, versus about 10% on chemotherapy, and lifted survival from under 7 months to about 13. Oncologists say the price puts a life-extending drug out of reach; the maker says it reflects therapeutic advance and supports innovation.

CancerCare Manitoba oncologist Dr. Ralph Wong says patients in his practice are crying because they cannot access this drug, which is not yet approved in Canada - a stark example of how U.S. drug pricing leaves Canadians paying out of pocket or going without.

Health policy2 days agoCanada

Low awareness limits uptake of federal disability savings plans among eligible Canadians

Only about 34 per cent of Canadians eligible for the Registered Disability Savings Plan have opened one, a 2024 Statistics Canada investigation found, versus roughly 68 per cent uptake for TFSAs and RRSPs. The plan offers up to $70,000 in federal grants and $20,000 in bonds, but take-up is held back by low awareness, few providers, and a 16-page clinician questionnaire needed to qualify for the Disability Tax Credit.

Frontline workers may be the first to tell eligible clients about a plan worth up to $90,000 in federal help that most never hear about.